Monday, July 07, 2014

Justin, who has cerebral palsy and was born missing parts of his brain, also has a seizure disorder, which has gotten worse lately. He's often silent during his seizures, which means he has to sleep with his parents so they can tell when he needs help. Judy says caring for Justin is a lot like taking care of a newborn....Except Justin is not a baby. He just turned 16 and weighs 100 pounds. He can't talk, he can't walk and he'll always require around-the-clock care. Like the estimated 17 million people in the U.S. taking care of their special-needs kids, Judy's days largely consist of making sure Justin's needs are met....

The faith community is a major source of support for James and Judy Lee. Every Sunday the family attends Mass at Sacred Heart Catholic Church in Sacramento. James welcomes people's empathy, but he rejects their pity. He recalled a man at a support group once asking him if he hated God because of Justin's disability.

"I said, 'No, I'm actually thankful that He chose us to take care of Justin,' " he says.

Read it all.

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